Maggie’s Story ~ Part 3 – CureSMA

Please visit to see the original campaign by Brannon Pack and support Maggie.

Read more about SMA here –

It was still February, toward the end of the month. My life, crazy as always with kids and travel and sports. We were packing up for a weekend tournament in Little Rock. Kelly called to tell me that they would be making a trip that same weekend, before they had even had a chance to make their trip home with their newly brought into the world sweet Maggie pie. After an upper gastrointestinal series (UGI), they wanted Maggie rushed to Arkansas Children’s in Little Rock. Maggie’s first days here were starting out a little rocky. She was diagnosed with Intestinal Malrotation and lacking the natural connective tissues to hold her organs in place, so at nine days old she had to have surgery to reroute her intestines and have her appendix removed.


Since we were there for the tournament, we decided to drop in and see our favorite Alexanders. I will never forget the image of Maggie lying in the tiniest little hospital bed I have ever seen. Tubes, wires and tape are not the first things that you want to dress your newly born baby girl in, when you bring her home, or in this case, from one hospital to another. But, she was still the most beautiful baby. Perfect skin; perfect little fingers, toes and cheeks. Man, I love her cheeks! We got lots of hugs and visited for a while, and I hated to leave them there. You know, when you care about someone SO much – you want to be with them every second, to make sure that they have everything they need, and want for nothing.

You know, they say trouble comes in 3’s., Jason’s mom had driven them to Little Rock that weekend, and had to leave and head home because Jason’s Grandma had fallen and broken her hip. Thankfully, she was okay. At the same time all of this was going on with Maggie, and then Jason’s grandma, Kelly was struggling with some medical issues of her own.

We were in the middle of a tournament game and I got a call from her, and in her sweet ”I wish I wasn’t having to do this to you” little voice she asked me if I could take her to the emergency room. I knew then, it definitely could not be good. She and I spent most of the night in the ER, it was great bonding time. Because who doesn’t want to spend some fun time in the ER in downtown Little Rock? I guess the crazy part of all of this for she and I was that had we not been there together, that exact weekend, she would have had to ride a bus to the ER from the children’s hospital. If you know us, and you know where she was, you know that is SCARY.


Call it what you will. I call it a God thing. I was so incredibly thankful in that moment to be able to be there; of all the times I could be there. Thankfully – this too shall pass. As luck would have it, that wonderful mama of Kelly’s and that super Rad brother in law, Brad, made their way to Little Rock to pick up the sweet stranded family!! Unfortunately, that wasn’t the end of it. Not long after they made it home from Little Rock, Kelly was admitted to the hospital for surgery. Now, I am not going to lie, I did get to keep Maggie for a few hours a day while she was there (don’t slap me, I love you), so while I was SUPER SAD she had to have surgery, those sweet baby snuggles were the best snuggles ever.

All joking aside, this poor family went from a happy healthy pregnancy, to a whirlwind of crazy in a matter of moments. It was weeks before they got to just be home with their newborn baby girl, who had just had surgery, mama who had just had surgery, and baby who had developed MRSA to complicate the situation even more….. to be continued

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About Renee

Founder of ThatsJustLife.Com, Contributing Author of The Mom Quilt and The Mom Village, Blogger, Tech Guru, PR, Brand Management, Business Development. Content and Social Media Manager at Element Associates. Over the last year, she has put a large focus on community building, digital outreach campaigns and social media management. Renee is also an entrepreneur in network marketing and graphic & web design. Renee lives in Arkansas with her husband and two very busy and energetic teenagers. She loves meeting new people and taking on new challenges!

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